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Original comment:
Depuis de nombreuses an nées, l’AFH a décidé de prendre son destin en main pour vaincre les idées reçues sur l’hémophilie, la maladie de Willebrand et les autres troubles rares de l’hémostase. Mais aussi pour accompagner les patients et leur proches dans leur quotidien.
Cette année, la Fédération mondiale de l’hémophilie, dont l’AFH fait partie, a décidé pour la Journée mondiale de l’hémophilie 2015 d’aborder le thème de la famille et de la solidarité. L’AFH a aussi choisi
cette thématique.
Le terme « famille » symbolise l’entourage proche d’une personne, que ce soit les parents, des amis, des collègues, etc. qui ont toutes en commun la faculté de soutenir et de se mobiliser.
La Journée mondiale de l’hémophilie offre une tribune pour sensibiliser la famille éloignée, les amis, les collègues ainsi que les soignants à la situation des personnes atteintes d’un trouble de coagulation héréditaire afin qu’ils leur apportent davantage de soutien et une écoute toute particulière en ce jour.
Cette année, essayons de « Former une grande famille solidaire ».

Réalisation : Laurent Fleutot
Production : Arnaud Lemaire
Merci aux danseurs et à Paul, professionnel du BMX Freestyle
posted: 9 years ago

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Flatmattersonline: Paul Dezeix – World Hemophilia Day 2015  
Posted: 9 years ago
 

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